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Millions Missing Event Dublin May 2018

ME Advocates Ireland (MEAI) are hosting the Millions Missing Dublin event which will be taking place on May 10th from 11:30am to 2:30pm outside Leinster House on Kildare Street, Dublin 2.

This event is for everyone with Myalgic Encephalomyelitis (M.E.), to highlight the need for health equality, etc. We hope to meet as many Government Representatives at the event to chat to them about M.E issues in Ireland.

The bigger and louder we are the better, so if you cannot attend perhaps a family member, friend, or carer, etc., might attend or pop by to say hello at any time.

Please see further details in the link below, show your interest by hitting the RSVP button and please share the link to spread the word.

Many thanks for all your support.

ME Advocates Ireland
Email: -

*** Template Invitation Email for your TD to the #MillionsMissingDublin Event.

The organisers of the #MillionsMissing Dublin event have sent emails to all TDs asking them to come out and talk to us on Thursday May 10th.

We are asking you, M.E. patients, carers, and family members and friends, to write directly to your own TDs, to ask them to come out and talk to us all at the event. We've already had a few email responses from TDs saying that they have put the event in their diary. They are also asking for our addresses to assess whether we are constituents or not. This is important to them. Votes count. So, could we ask you to write to your TDs directly please.

There is a template email below that you can use if you like. It's just to help anyone who needs a hand. Of course, you can write up your own email in your own style, and perhaps give your TDs an indication of how unwell you are, that you are unhappy with the way things are for M.E. patients in Ireland, etc. The original letter from the organisers to TDs gives more info on M.E. and the problems we face re: diagnosis, education, support, and medical care etc.

Template Email below.

Here's a link to all TDs to help you find your local TDs email addresses:-

Template Email: -

Millions Missing Visibility Action 2018

Date: Thursday May 10th
Time: 11:30am ? 2:30pm

Insert Your Address
Insert Date


I am writing as a constituent of yours to ask for your support.

A group of Myalgic Encephalomyelitis (M.E.) patients, their carers and advocates will be holding a visibility action outside Leinster House on Thursday May 10th for a few hours to highlight the lack of appropriate medical and support services for those with M.E. I would be very grateful if you would come out to meet them at some time that day to hear their concerns.

The visibility action is part of a global event to coincide with World M.E. Day and is called #MillionsMissing.

Many patients with M.E. are bedbound and housebound and are too ill to attend a demonstration so in their place they are sending an Information Tag with their photo and some detail about themselves, which will be on display at the event.

I am (edit as appropriate), a M.E. patient/carer/friend of ME patient/family member of M.E. patient/advocate and if I cannot make it there personally there will be a tag in my name (or name of person with ME). I hope you will take the time to read the information tags that will be on display and learn something about the people who desperately want to get back to living a normal and healthy life.

The organisers of the visibility action have already emailed you explaining how awful this illness can be and of the neglect suffered by thousands of people in Ireland. As a constituent I am asking you to come out and speak to the organisers and attendees outside Dáil Eireann for even a few minutes. Most of them are patients themselves and they will pay a very high physical price for their efforts, with many likely to end up being extremely ill for an extended period afterwards.

We would like your support on May 10th at 11:30am to 2:30 pm please. Come out and say hello. Listen to the stories and read some of the information tags. We need a commitment from you to keep up communications about M.E. issues to progress the needs of people with M.E. here in Ireland.

Yours Sincerely,